Legislative Work
March to the Capitol
Our Amazing Fighters has been going to Capitol Hill since 2017 to advocate for better research, funding, and legislation for pediatric cancer. While we often have meetings in person, during the coronavirus pandemic, we lobbied several times a week, virtually. We also have participated in local/state legislative work in addition to the national-level work we work on.
Additionally, Our Amazing Fighters secured state, county, & city proclamations for the month of September for Childhood Cancer Awareness Month in 4 states, over 10 counties & cities.
OUR PROJECTS
Our Advocacy Work
Bills & Legislation We Have Advocated For
Race for Children's Act
The Race for Children’s Act promotes research and drug development for pediatric cancer. It was passed unanimously in the house of representatives in 2017.
Star Act
STAR stands for survivorship, treatment, access, and research. It addressed some of the major issues facing the childhood cancer community especially regarding quality of life and research.
The Reauthorization of Creating Hope Act
The Creating the Hope Act was originally passed in 2012. Since pediatric drug development is not “profitable”, for drug companies, it created vouchers to incentivize and award companies that do. It passed again in 2019 and will have to be reauthorized again in 2024.
Gabriella Miller Kid's First Research Act 2.0
Gabriella Miller Kids First Research Act 2.0 was originally signed into law in 2014. It takes nontaxpayer, penalties collected when pharmaceutical, cosmetic, supplement and medical device companies breawk the foreign corrupt practices act and redirects them to critical rare pediatric disease research. (We like to say its making beauty from ashes.)
H. Res 114 (Moonshot4Kids)
Moonshot4Kids is the national dipg awareness resolution with the goal to make may 17th “DIPG Awareness Day” to praise greater awareness for childhood brain cancer and to encourage research into cures for pediatric cancers in general.
Awareness
Raising Awareness
Part of Our Amazing Fighters mission is spreading awareness and advocating on behalf of all kids who have or are fighting pediatric cancer. Our Amazing Fighters started off as a social media page and we love getting to honor warriors, remember angels and share facts on our page. We share the stories of amazing fighters to about 10,000 followers on Facebook and 8,000 followers on Instagram.
You can follow us on social media from below.
Additional Awareness Initiatives...
Other awareness projects have included projects like local and state proclamations. In 2022, Our Amazing Fighters secured "Childhood Cancer Awareness Month" Governor declarations in Virginia, Mississippi, and New Hampshire as well as several other city and county proclamations.
Additionally, Our Amazing Fighters has participated in several events with President Biden's Moonshot Initiative. Our executive director, LeAnna, was personally invited to the White House for the Childhood Cancer Forum in September.
Our Amazing Fighters has also been apart of several "Gold Lightings" including Niagara Falls, The Virginia Governors Mansion, and Wilson Hall at James Madison University.
