Race for Children's act
The reauthorization of creating hope act
Gabriella miller kids first research act 2.0
h. res 114 (Moonshot4kids)
The race for children's act promotes research and drug development for pediatric cancer. It was passed unanimously in the house of representatives in 2017.
STAR STands for Survivorship, Treatment, Access, and Research. It addressed some of the major issues facing the childhood cancer community especially regarding quality of life and research.
The creating hope act was originally passed in 2012. since pediatric drug development is not "profitable" for drug companies, it created vouchers to incentivize and award companies that do. It passed again in 2019 and will have to be reauthorized again in 2024.
The Gabriella Miller kids first research act 2.0 was originally signed into law in 2014. It takes non-taxpayer, penalties collected when pharmaceutical, cosmetic, supplement and medical device companies break the foreign curupt practices act and redirects them to critical rare pediatric disease research. (we like to say its making beauty from ashes).
Moonshot 4 kids is the national Dipg awareness resolution with the goal to make may 17th "DIPG AWAREness day" to raise greater awareness for childhood brain cancer and to encourage research into cures for pediatric cancers in general.